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Celiac Disease Awareness

April 09, 2008

On-line Grocery Scans Products for GF

I have returned from vacation and was planning a lovely post on how great Mexico was, but ran across this in the news this morning and had to share it.

This is so cool - Peapod is an on-line grocery store.

Peapod delivers to 1,500 zip codes and over 12,700,000 households in the following metro areas:

  • Boston
  • Cape Cod, Mass.
  • Fairfax County, Va.
  • Montgomery County, Md.
  • Washington, D.C.
  • Cromwell, Conn.
  • Fairfield County, Conn.
  • Hartford, Conn.
  • New Haven, Conn.
  • Long Island, N.Y.
  • Mt. Vernon, N.Y.
  • Medford, N.Y.
  • Rhode Island
  • Chicago
  • Baltimore
  • Watchung, N.J.
  • Milwaukee, WI
  • W. Danbury, Conn.
  • Peapod features over 8,000 products in a range of categories: produce; meat and seafood; deli items; prepared foods; natural and organic foods; Kosher foods; office and school supplies; seasonal items; and video products; pet items; health and beauty aids; wine, beer and spirits (in specific markets) and private labels from Peapod by Stop & Shop and Peapod by Giant

    So what is so cool about that?  The company now has what they call a  Nutrifilter which you can use to determine the contents of their food products, including gluten.  Here is a news article on Nutrifilter

    According to Peapod's website, the filter will:

    screen out all foods containing gluten based on the manufacturer's packaging claim. Products that do not normally contain gluten are not necessarily included

    Even though they do not deliver to this area yet, I had to try it out and not on something easy like bread.  So I tried chicken broth and some dairy products and it seemed to work great.  However, when I tried gum and candy, there were some items that I know  are gluten free that did not show up as so. 

    I'd be curious to see if anyone else has tried this out and what they think.

    March 04, 2008

    Take 5 Minutes to make A Difference

    We all know the numbers - only one percent of the estimated 3 million Americans who have celiac disease have been diagnosed.  Aren't we lucky to be part of that one percent. 

    Let's help raise some awareness!!!

    **Be a Celiac Advocate:

    Send an email to your legislator urging them to  support H.Con.Res. 70 -- Celiac Awareness Legislation.  This legislation was introduced by Rep. Nita Lowey to make May National Celiac Disease Awareness Month.  More awareness benefits us all in the terms of funding research, more insurance coverage, better labeling and more gluten free food options. 

    Follow this link to be a Celiac Advocate .  I just did it and it actually took me less than 30 seconds!!  Forward this link to your celiac community.

    **Say Hi to Mary

      Mary with one of the Jonas Brothers

    Mary is a High School Student from Ohio who has recently diagnosed with celiac disease.  She has designed a web site for celiac awareness as part of a school project.   

    Follow this link to sign Mary's guest book and let her know just how huge and loving the celiac community is.

    **Something Fun for You

    Okay, you have done all of this clicking, now it is time to reward yourself and support our favorite cause at the same time.

    Go to Make Mine Gluten Free and shop for the latest in GF fashion accessories - I really like the aprons and the canvas shopping bags.  No, I have absolutely no financial interest in this website. 

       BBQ Apron

    February 10, 2008

    Parent TV News Story About Kids and Celiac Disease

    Parent TV features a news story on kids and celiac disease including an interview with Dr. Green the Director of The Celiac Disease Center at Columbia University and author of the book, Celiac Disease, a Hidden Epidemic.

     

    February 04, 2008

    Enzyme May Treat Gluten Intolerance

    Here is an article you might find interesting:

    Enzyme May Treat Gluten Intolerance

    An enzyme has been recently identified that is able to degrade gluten in a laboratory simulation of the gastrointestinal tract.

    If clinical trials bear out the findings, adding the enzyme to gluten-containing meals "might eliminate gluten toxicity, thus offering patients the possibility of abandoning (occasionally) their strict gluten-free diet," write the authors

    For the rest of the story, follow this link Gluten Enzyme.

    January 16, 2008

    2008 Celiac Conferences

    Sorry I have been absent,

    the "dog" has been biting at my rosebush (read the post below to understand) and sniped it completely to the ground,

    in other words, my newly revised website that I spent hours on,

    crashed,

    disappeared,

    vanished.

    I am not a webmaster -

    thankfully, living near Microsoft, I have friends who are,

    and after a few (okay a lot of emails and calls), my website is back up.

    Now, looking forward to 2008.

    I have been collecting information on upcoming Celiac Conferences

    I have heard they are wonderful places to connect with others with similar diet restrictions, extremely educational and you get to sample a lot of gluten free food.

    Here is what I have found so far.

    Please pass along any others you know of:

    • April 3-6, 2008

    "The Higher Truth of Health"
    A Health Conference to Educate, Entertain
    and Enlighten You
     Taos Convention Center   -    Taos, New Mexico
    Brought to you by the Intestinal Health Institute
    and Dr. Kenneth Fine

    https://www.homepagetx.com/ihi/

    • May 3, 2008

    Celiac Disease Foundation presents its Annual Education Conference & Food Faire on Saturday, May 3, 2008 at Good Samaritan Hospital in Los Angeles, California at the Moseley-Salvatori Conference Center.

    http://www.celiac.org/newsEvents/conference2008.php

    • May 9-11, 2008 

    2008 VICTORIA CONFERENCE
    T.G.I.F. The Gluten Intolerance Festival

    The next national conference of the Canadian Celiac Association National to be held in beautiful Victoria, British Columbia. May 9-11. 2008.    http://www.victoriaceliac.org/

    • June 6 and 7, 2008

    GIG Annual Education Conference  Dallas/Fort Worth, Texas

    From someone on ListServ:  You absolutely can't go wrong in attending the GIG National Education Conference in the Dallas/Fort Worth, TX area.  The lineup of speakers is outstanding with almost all of the major researchers, doctors, cookbook authors in regards to celiac disease/gluten intolerance and the GF diet, and reps from the American Celiac Disease Alliance on top of that.  What more could you ask for?  We're also planning wonderful food and fun.  Come meet GF friends from all over the U.S.  Register at www.gluten.net 

    • October 17-19, 2008

       

    31st Annual CSA Conference in La Vista, Nebraska

    http://www.csaceliacs.org/Conferences/2008AnnualCSAConference.php

    • September 11 – 13, 2008

    XIII International Celiac Disease Symposium 2008

    The 13th World celiac meeting will take place in Amsterdam

    • November 3, 2008

    Children’s Hospital Celiac Conference in Columbus, Ohio with Dr. Fasano a Professor of Pediatrics and Director, Pediatric Gastroenterology and Nutrition at the University Of Maryland School Of Medicine in Baltimore. He is Medical Director for the Center for Celiac Research at the University. 

      http://www.nationwidechildrens.org/gd/applications/controller.cfm?page=275&cid=94&type=1&CatID=3

    It would be a great excuse to go to Amsterdam,

    but I am leaning towards Victoria BC because it is close, beautiful and has lots of great GF dining options and

    Dallas/TX because I have heard this is a great conference and I have lots of family in Texas.

    January 09, 2008

    www.glutenfreemom.com

    I love the following.

    It is from the blog of Curtis Ann Matlock.

    She actually has lots of wonderful things to say,

    but this one keeps popping back in my head:

    I have a rosebush that my grandmother started from a twig she plucked from a bush at her mother’s home some sixty years ago.  When we sold my grandmother’s home, I dug up that very same bush and hauled it eighteen hundred miles to plant at my home, where it has flourished.

    I keep starting new bushes from it, and last spring I took one of those little beginners a thousand miles to plant at my son’s new home. The small thing instantly began growing with pretty shoots and verdant green leaves, which son’s dog promptly chomped off.

    Eventually the dog ate the entire bush– yes, thorns and all–right down to the ground! Now the dog is gone (She tended to want to chew on neighbors and delivery people, too, so a new home with a fence had to be found.) and, if you look closely at where the bush is planted, you can see the promise of green life stirring yet again.

    That’s me and this blogging site. Each time I put forth a new piece of writing here, along comes life and chomps me right off.  Such is the way with any good endeavor, anything that is creative in nature. Resistance, Steven Pressfield names it in his book, The War of Art, saying that the more important the action is to our particular soul’s growth, the more Resistance we will encounter while we pursue it. He capitalizes Resistance, giving it personification.

    There is always another chance…This thing called failure is not the falling down but staying down.   — Mary Pickford

    The thing is to keep getting up and trying again. You will get somewhere, and very often it is far further and in a direction more grand than you ever imagined. My efforts at this blog have led me to decide to install a blog at my own url. Easy everyone said. Ha! But, oh, what an adventure! And often I think of that little rosebush, and smile.

    So too it has been with my website, Gluten Free Mom.com

    I would set aside a day to work on it, and no sooner did I sit down at my computer than the school would call to say one of my children was sick.

    I would sit aside a week night to work on it, and my husband would have to stay at work late.

    But I keep persisting (sometimes into late in the night) and here it is,

    at least the introductory version.

    My intent is only to help others - to freely share the wealth of information I continue to gather on the gluten free lifestyle.

    My roses are anyone and everyone that I might help in the smallest way -

    They make the most beautiful bouquet. 

    This is just the introductory version - life does not stop so there is always more to come.

    So, for now, here it is:

    gluten free mom.com.

    December 17, 2007

    American Family Physician Article on Celiac Disease

    Not wanting to be too serious during the holiday season, but this is a link to a great article on Celiac Disease.

    It is the December 15th edition of American Family Physician. 

    American Family Physician Article on Celiac Disease.

    I think it is sometimes easy for extended-family members to forget how serious celiac disease can be (especially when they see how healthy you are now that you are on the gluten-free diet),so I forwarded this article to members of our family. 

    November 26, 2007

    Celiac Disease in the News

    It is so great to see that awareness of celiac disease is on the rise across the country.

    Raising Awareness of Celiac Disease in Illinois:

    http://media.www.dailyvidette.com/media/storage/paper420/news/2007/11/15/News/Ssid-Raises.Awareness.On.Quad.For.Celiac.Disease-3102755.shtml

    From The Street.com, Big Firms Taking a Slice of the Gluten Free Pie

    http://www.thestreet.com/s/big-firms-take-a-slice-of-gluten-free-pie/newsanalysis/food-beverage/10387573.html?puc=_tscrss

    Building a Company on Gluten Free Food from Baltimore:

    http://www.examiner.com/a-1056826~Building_a_company_on_gluten_free_cooking.html?cid=rss-Baltimore

    Learning to Cope from Ludington, MI:

    http://www.ludingtondailynews.com/news.php?story_id=38223

    Celiac disease in general from Cincinnati:

    http://news.cincypost.com/apps/pbcs.dll/article?AID=/20071102/LIFE/711020350

    Celiac Disease Becoming Prominent from Syracuse:

    http://www.9wsyr.com/news/local/story.aspx?content_id=12ade2fa-89fa-4b60-9c3d-df9f90c20c34&rss=112

    Living with Celiac Disease from Boston:

    http://www.myfoxboston.com/myfox/pages/News/Detail?contentId=5033726&version=1&locale=EN-US&layoutCode=VSTY&pageId=3.5.1

    Gluten Free Diet is Tasty from Rapid City http://www.rapidcityjournal.com/articles/2007/11/26/news/features/doc4733294456153972224207.txty:

    November 24, 2007

    Lobbying for GF Girl Scout Cookies

    As we all know, this is the time of year when Girl Scout Cookies go on sale. Being a former Girl Scout Cookie Mom, we gorged on these cookies in the past.  Now, however, it is always hard when our daughter sells the cookies but can't eat any herself.  We are going to spend this weekend trying to make Gluten Free Girl Scout cookies and I will post the results on Monday with any recipes that are successful. 
    In the mean time, email the bakers for GSA and encourage them  to make an allergy free cookie.  You can email them at abcbakers@interbake.com.  FYI, the following is the response from GSA:

    Thank you for your inquiry regarding gluten free and wheat free products. Our Research & Development department is constantly working on new products and ways to make the Girl Scout cookies that are good for everyone.  I will pass your comments along and hopefully something will come out in the future.

    Celiac Disease Awareness Month

    To encourage celiac disease awareness, contact your local Congressional Representative www.house.gov/writerep and encourage them to pass H. Con Res 70, which will designate May as National Celiac Disease Awareness Month.  By doing this, the United States will join other countries that already acknowledge Celiac Disease during the month of May.